Largest harmonized database with multimodal MS data

1- Retrospective cohort

Clinical data 67, 300 persons - Genetic data 47,797

Cohort

GSA

OE

WT

HC_total

1183

5881

413

MS_women

2559

4777

314

MS men

1031

1808

125

HC_women

839

4426

319

HC men

344

1455

94

MS_total

4944

12527

854

Sex MS

3590

6585

439

Age at onset

3262

6370

440

Course of disease

3382

6337

423

EDSS at diagnosis

1520

5683

411

EDSS at date of last examination

1519

5683

411

3 or more EDSS measures

1553

1824

136

Cerebrospinal fluid IgG-index

859

2585

274

Oligoclonal band status in CSF

934

2888

295

Plasma NFL

1665

2199

348

Any treatment data

2862

2364

165

Any MRI data

324

472

122

 

N=510

2- Prospective cohort

Prospective cohort study protocol

Site

M0

M6

M12

M24

M36

M48

M60

Spain

26

0

22

20

19

9

1

Italy 1

50

34

35

47

19

5

1

Italy 2

168

55

155

147

42

0

0

Italy 3

3

3

3

0

0

0

0

Germany

89

82

80

78

65

40

19

Belgium

32

0

31

27

24

0

0

Sweden

70

0

69

65

59

37

3

Norway

29

28

28

28

27

15

4

Denmark

50

50

49

46

39

18

4

Variable

M0

M6

M12

M24

M36

M48

M60

bmi

510

252

472

458

291

123

32

disease_course

510

252

472

458

291

123

32

EDSS

511

250

471

457

292

124

31

New_relapse_at_timepoint

517

252

472

458

294

124

32

mri_cervical_date

503

140

281

424

180

62

12

mri_cranial_date

504

219

359

428

247

105

30

mri_thoracix_date

502

139

280

422

176

62

12

BDI_score

510

193

469

433

290

122

32

Peg_test_dominant_hand_trial1

506

196

467

430

287

120

31

Peg_test_dominant_hand_trial2

504

195

467

428

287

120

31

Peg_test_non-dominant_hand_trial1

507

196

466

430

287

120

31

Peg_test_non-dominant_hand_trial2

506

196

467

427

287

120

31

25_Foot_walk_test1

506

196

468

434

288

120

31

25_Foot_walk_test2

505

196

468

434

288

120

31

25_Foot_walk_test_device

511

247

472

458

293

122

31

PASAT_3_test

269

164

229

208

125

47

20

FSMC_cognitive_score

510

191

468

433

292

123

32

FSMC_motor_score

510

191

468

433

292

123

32

FSMC_total_score

510

191

468

433

292

123

32

FSMC_cognitive_fatigue_level

510

191

468

433

292

123

32

FSMC_motor_fatigue_level

510

191

468

433

292

123

32

FSMC_total_fatigue_level

510

191

468

433

292

123

32

SF36_physical_functioning

507

193

469

434

291

122

32

SF36_role_lim_physical

507

193

469

434

291

122

32

SF36_role_lim_emotion

507

193

469

434

291

122

32

SF36_energy

507

193

469

434

291

122

32

SF36_emotional_wellbeing

507

193

469

434

291

122

32

SF36_social_functioning

507

193

469

434

291

122

32

SF36_pain

507

193

469

434

291

122

32

SF36_general_health

507

193

469

434

291

122

32

SDMT_oral_score

509

197

468

429

285

120

31

Immunophenotyping

145

0

227

0

0

0

0

Genotyping

463

0

0

0

0

0

0

TREC

454

0

454

0

0

0

0

KREC

472

0

471

0

0

0

0

Collaborate with Us or Request Access


Are you interested in collaborating with us or accessing our data? We'd love to hear from you!

To proceed, please contact us with the following details:

  • Your name and organization
  • The specific data or resources you are interested in
  • Your intended use of the data (e.g., research, development, commercial application)
  • Any particular questions or requirements you might have

We have a streamlined process to facilitate collaborations and data access for industry and academic research purposes. Our team will review your request and guide you through the necessary steps to ensure a smooth and productive partnership.

Contacts

Prof. Ingrid Skelton Kockum – ingrid.kockum@ki.se

Dr. Alexandra Gyllenberg – alexandra.gyllenberg@ki.se